The past couple months have been a rollercoaster. I have good days and crappy days. It's been one thing or another. I don't mean for this post to be negative nellie, but i'm being real. I've been having trache pain or arm pain, but I am alive and well. If I feel, it's because I am alive and for that I am thankful. God is still with me and as my mom says," He's got his angel crew around you."
I went in to the hospital last monday for an overnight stay in ICU (when you're on the vent 24/7, you have to say in ICU). My doctor wanted to make sure I was getting proper ventilation after changing to a diff trache. I had my trache changed to a cuffless trache (without a plastic balloon attached from the inside out of the trache). My doctor believed that this extra, rough plastic could be irritating and causing more pain when I have my routine two month trache changes. After much discussion we both agreed to go ahead and give this new trache a try.
With miscommunication between doctors, nurses, etc, I ended up having my trache changed 3 TIMES in 2 days!! CRAZY!! NEVER in my life have i had that many in such a short amount of time. While the trache site is still sore, I CAN say that this cuffless trache IS easier to get in and out versus the cuffed one. Praise God!
|ouch! but my nurse K got it working with one attempt & with the smallest IV.|
My 32 hour stay in the hospital went by so fast. It was busy. My good friend James went with me and stayed the night with me. He was SUCH a big help, especially when it came time for me to go potty on the bed pan which i absolutely hate! lol. Good thing he has alot of patience, because i bugged him for alot of things, like adjusting my pillows, underwear or giving me a sip of water.
I packed my pink backpack the day before with items to make me more comfortable [deodorant, toothpaste/toothbrush, mouthwash, my moisturizer, ipod, notepaper] and I sure did pack James a big bag of candy corn and some chocolate, which came into good use at 5am..NOT EVEN KIDDING!
I am already a light sleeper and between the blood pressure cuff squeezing tight my arm every 30 mins to 1 hour and my pulse ox coming loose and the machine beeping, I couldn't sleep. I heard when James would move or snore lol, my nurses or RT's checking in on me and even heard across the way a nurse yelling at a patient, "OPEN your eyes!! at 2 am! My circumstances were certainly not as bad as some of the other patients, who James said, there was a John Doe in my pod. Poor guy and how scared he must have felt.
|about 11pm. about to write since i can't sleep yet.|
Around 5 am, i needed more pain meds and James woke up. We both kinda took deep breaths and hoped for better sleep. Around 6, i finally fell asleep as I had been awake since 7 am! I then woke up at 7:50 as my RT, Valerie started her shift and was making her rounds. It was pretty dark in my room and still felt like 5am. I was exhausted.
My day nurse, Chuck came in too and asked if I was hungry. I said, kind of, but i needed to pee more. I really needed to pee around 4, but was too tired and lazy to really move anymore. We ordered breakfast, so i could eat something and take my morning reg meds. After eating a bit, going potty, James and I went back to sleep at 10ish, because we were all just waiting for whenever my doctor would arrive to check on me. He did at 11 am---oh good, a little more sleep!
I could go on about what happened the rest of the day, as above, needing to change my trache 2 more times, but it's a long story. I ended up not getting home til 7pm that night. I was utterly drained.
I'd just like to add that all of my nurses and Rt's were extremely kind and helpful. They "bent the rules" a bit to make me as comfortable as possible. I even had a God-connection happen as I was re-united with Sandra! I recognized her as she passed by my room. James had asked her for a blanket and I told James, hey! tell her i need to talk to her!"
You see, Sandra was a CNA that helped me 6 years ago when I first was placed on the vent in the hospital. She was one of my favorites who really went above and beyond to comfort me when I was extremely scared and sad about my situation.
So she came in and asked her if she remembered me. She didnt at first, but after I reminded her of how i knew her she smiled and did! I started telling her how she impacted my life then and I started to cry. After chatting a bit,we exchanged info and we now have a new pen pal!! She couldn't believe that she saw me and that I remembered her after all these years. Seeing her was such a bright spot.
My good friend Diane, a nurse, also stopped by to see me. I didn't even know, but she actually works on the floor/unit I was on! She treated us to starbucks! Getting to see Diane was comforting because I hadn't seen in her over a year. We talked for about ten minutes before her shift started.
|thank you diane for the treat!|
This past week has been spent getting "caught" up on sleep and SLOWWLLYYYY replying to emails that are backed up to three weeks! I have about 5 people that I need to call and 5 letters that I need to respond to...one step at a time.
I miss blogging and miss you! until next time, stay well.